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Meet Tina Johnson

 Tina Johnson is a Trigeminal Neuralgia patient who has been volunteering with the Facial

Pain Research Foundation for a couple of years now. Tina discovered the Foundation as she

was doing research about TN and reached out to see what she could do to help. Tina organized

two fundraisers in Central Florida to raise funds and awareness about TN. Tina has also started

a Central Florida area support group that she has been hosting at ORMC in Orlando.

 

Hello everyone!

Tina here. I wanted to take some time to thank everyone for the warm welcome and well wishesI have received as I take over helping with Communications. The Facial Pain Research Foundation is very important to me as I am a Trigeminal Neuralgia patient.

I was diagnosed in 2015 and had MVD on the left side in the same year. I’m still in pain. I discovered the FPRF as I was doing some research on TN post surgery. I quickly got involved and hosted a couple of fundraisers in the Central Florida area. I have also started a Central Florida area support group for TN which I have been hosting at ORMC in Orlando. The next meeting is in June if you are local! And at all of 5’, I know I have some big shoes to fill.

Frank was one of the first who I interacted with at the Foundation and I am so thankful to him for all he has done for me, but mostly for all he did for this ever important cause. Please feel free to reach out to me should you wish to brainstorm on volunteering, fundraising events, to make sure you are receiving our newsletter, or just to talk TN.

I am honored and consider this a huge privilege to be able to continue being an active part of and representing the FPRF in new and exciting ways.

All my best!

Tina

Communications Coordinator

This email address is being protected from spambots. You need JavaScript enabled to view it.

This email address is being protected from spambots. You need JavaScript enabled to view it.This email address is being protected from spambots. You need JavaScript enabled to view it.

 

 

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